Saturday, August 8, 2009

Summer Continues

I haven't written in a while...not for any particular reason other than we are busy, busy, busy.

Summer is flying by. I can't decide whether that is good or bad. Since vacation, we have been busy here at home--attending cookouts, going swimming, playing at the park, etc. The boys started horseback riding again, which is great. They really both enjoy it and Eric is getting much better at paying attention during his rides.

The boys and I went to Wilkes-Barre a few weeks ago just to get away for a bit. My mom and I took the boys to Knoebel's for the day--a super cute amusement park just the right size for them. They seemed to enjoy it.

Sorry if this all sounds a bit flat, but I'm tired. Our usual schedule can be exhausting, but the last two were definitely brutal--and I'm not actually the one doing anything, I'm just the taxi driver. My Eric has been such a trooper.

We started a new therapy almost two weeks ago. It involves different colors of light, movement and sound. Since Eric has such intense sensory needs--running, jumping, deep pressure, etc.--this therapy is supposed to help his visual, auditory and vestibular systems communicate and interact more effectively and appropriately. Needless to say, he has actually enjoyed it. He gets to play with glow-in-the-dark toys during therapy (we tell him he is going to see the lights and stars). And, we paid a trip to the dollar store and got a whole bunch of trinkety-type toys so he got a "present" every time he finished a session. The first 12 days were center-based, twice a day for 30 minutes at a time. We conduct the next 18 days at home, twice a day for 20 minutes at a time. The center-based therapy was tough. Driving twice daily to a center ten miles away takes its toll, especially since we kept to our regular routine. Thank God my mother-in-law was able and willing to watch Evan, otherwise I'm not sure what we would have done. Evan couldn't go to therapy because the room has to be quiet, etc. and Eric wanted me with him so I couldn't sit in the waiting room with Evan.

I thought the transition from center to home would be tough, but he loves it. We go in my closet with a blanket and some pillows (and toys, of course) and he gets to chill and look at the light. He's been asking to go back into the closet all day and I've found him in there a few times.

It will be a few months before we see any types of results. Right now, it will be more bad than good. He's been more emotional, not sleeping as well, etc. All things that we were warned about. We have noticed a few good things though too--he's initiating better eye contact and is hardly hitting Evan at all.

Evan is doing great. He is scripting a ton lately, but his BSC assures me that that can be very typical before a large language jump. I can't imagine a large language jump with the kid because he simply does not shut-up all day long, but who knows.
I had his IEP meeting a few weeks ago and it went well. The preschool has a new director and I was a bit apprehensive about her upon first meeting her. After the IEP, I'm a little more at ease. He won't have a TSS with him next year and she kept saying what a sweet (and quiet) little boy I had. I kept telling her that clearly she had never seen him at home!

Eric starts Kindergarten in 2 ½ weeks. I am supposed to go later this week to take him to meet his teacher, see his classroom, etc.

Aside from that, not much is going on. It’s been so long since I’ve written that I’m sure I’m missing stuff. We are trying to plan a few more things this summer into early fall—Sandcastle, Hershey Park, canoeing and maybe a camping trip.

As always, here are a few recent photos of the boys.
The boys and I on the carousel at Knoebel's

The boys in the Vette at the Pittsburgh Vintage Grand Prix.

Rob and the boys on a bridge watching fireworks on the Fourth. The boys LOVED it!

Sparklers on the Fourth.

More sparklers on the Fourth.

Evan playing golf with a wiffle ball and one of Rob's irons.

No comments: